Current
Research on EMS:
It seems that hardly any research is being conducted
on EMS in 2007. You can find plenty of research on tryptophan, 5-HTP, other supplements,
and things like that - but next to nothing seems to be happening in research on just
EMS. I think it might be included in something at NIH involving other similar
diseases from time to time, but we don't hear much about it, whatever goes on. Any
research done in the areas of scleroderma, lupus, Fibromyalgia, Chronic Fatigue Syndrome,
and some other rheumatic diseases has the potential to help those with EMS, especially
with secondary illnesses such as Fibromyalgia and CFS and with the sclerodermatous
aspects of EMS. Research in diseases or conditions such as Restless Legs Syndrome,
Irritable Bowel Syndrome, and others have the potential to help us, also,
since so many of us have many other diagnoses like these in addition to EMS. So,
I think it's good to remind Congress and others of our existence and needs, but I
am not waiting breathlessly for a lot of research into EMS at this time - we are
too few in number and too rare a disease that has been written off, it seems, sadly.
We will probably be of historical interest, however, so that is why I encourage people
to sign up for things like The National Databank of Rheumatic Diseases. (see
the link later on this page)
NIH funding for EMS
The Online Petition for EMS Research and the
Paper Petition for EMS Research drives have been a great success. The signatures
were sent to NIAMS and various members of Congress. I'll keep you posted on
developments. However, letters from you to your representative and senators are always
a great help. Please consider writing a letter about appropriations for research
for NIH into rare diseases such as EMS and autoimmune diseases. Late January through
May is a great time to write a letter to your senators and representative,
although the early fall is good, also. To read the letter I received from NIAMS in
response to the petitions sent to them last September, please go to: NIAMS
LETTER
Other (to be posted as I learn of projects)
NIH Research Information
This site
tells about the clinical research into various diseases and areas going on at NIH.
It's a full and informative site.
Other (as available)
